'Every day a challenge' for mom of boy with rare bone disease

This little boy may look like a baby, but he's really 7 years old.

His growth is stunted by a rare disease while  his mother is fighting to raise awareness and money, to help fund research and hopefully, new treatments.

The 7-year old suffers from a brittle bone disease called osteogenesis imperfecta which his mother says has left his body deformed and diminishes the chance at a normal life.

As most people prepare for the holidays, Grenisha King says she's just happy to have another day with her son.

"At the age of 2 years old, doctors told me Amere wouldn't make it past 4," said Grenisha King. "He can't walk, bath himself, feed himself."

It's not an easy life, Amere is often in pain.

King says Amere does not have a wheelchair and every day is a challenge for her and her son to do things that most take for granted.

It's just so hard, I've been lifting him for seven years," she said.

But King works hard to keep her son happy.

She says Amere loves to play video games and like most 7-year-old children, he wants to see Santa Claus.

FOX 2: "What would you like him to bring?"

"Games," said Amere.

By sharing her story, King hopes that people will find the generosity to help not only her son but anyone else suffering from this disease.

"I started a GoFundMe for hope of research, hope of medicine to cure this, to get a wheelchair," she said. "It's so hard."

If you would like to make a donation, CLICK HERE to help this family and others like them.

"I'm going to fight to the end," she said. "I'm going to continue fighting for him."

Up Next:

  • Popular

  • Recent

Stories you may be interested in - includes Advertiser Stories